Sunday, October 29, 2023

Do you have your own personal Desiderata?













“Go placidly amid the noise and the haste and remember what peace there may be in silence. As far as possible, without surrender, be on good terms with all persons.”

If you were, like me, a teen in the 1970s, you may recognize that as the opening lines of Desiderata. Written by American Max Ehrmann in 1927, it was reprinted on posters in coffee shops and dorm rooms across North America. It was even a hit song on the radio in 1972.

Desiderata — Latin for “things desired” — became like a credo for many people, including me. For a teenager wondering about his future and place in the world, the concluding lines brought special comfort: “And whether or not it is clear to you, no doubt the universe is unfolding as it should. Therefore, be at peace with God, whatever you conceive Him to be.”

Desiderata came to mind when a Christian friend told me he had written a personal manifesto to help guide him in the last third of his life.

 

Read the full column in the WFP here.

Tuesday, October 17, 2023

Oct. 16-17 Antisemitism conference in Ottawa: Face It, Fight It










On Oct. 16-17, I was at the first-ever national Antisemitism: Face It, Fight It conference in Ottawa. It was sponsored by Centre for Israel and Jewish Affairs (CIJA), with support from Jewish Federations across Canada, including the Jewish Federation of Winnipeg. I was there reporting for the Winnipeg Free Press and the Canadian Jewish News. Below find the articles I wrote before it, during it and after it. I will be adding to the list as the conference continues.

1. Conference to address "frightening growth in antisemitism across the country"

WINNIPEG, Man. -- War is raging between Israel and Hamas as this column is being written on October 8. It is on the minds of Canadian Jews. Also on their minds is the rise in antisemitism in this country. That’s why, a year ago, they started planning a first-ever national conference to discuss the ongoing battle against hate toward Jews.   

Called Antisemitism: Face It, Fight It, the October 16-17 conference in Ottawa is sponsored by the Centre for Israel and Jewish Affairs (CIJA), with support from Jewish Federations across Canada, including the Jewish Federation of Winnipeg.

According to Shimon Koffler Fogel, President and CEO of CIJA, the goal of the event—the largest national event of its kind in Canada—is to address the “frightening growth in antisemitism across the country.”

About a thousand people are registered for the two-day gathering, which will address the changing face of antisemitism today and then encourage attendees to return home and turn what they learned “into action,” as Fogel put it.

Of major concern to conference organizers is the rise of antisemitism on social media, along with other kinds of hate.

“Online hate is spreading,” Fogel said. “We are still struggling to get a handle on that and how to push back against it.”

Through the conference, participants will be encouraged to find ways to confront it and build allyship with other groups that are also concerned about hate on the Internet.

“It’s not enough to wring our hands,” he said. “We need to stand up and move from victim to empowered action.”

While at the event, conference goers will hear speakers on topics such as “United Against Antisemitism: Confronting the Challenge Together;” “Online Hate: Breaking out and Breaking down the Echo Chambers;” “Countering Antisemitism: Hate vs. the Law;” “Turning Sideline Passion to Frontline Action: Finding your Voice in the Political World;” and “Harnessing Social Media for Good: Done with the Doomscroll.”

Participants will also fan out to visit politicians on Parliament Hill, asking them to undertake a national campaign to promote social media literacy.

The goal of such a campaign would be to help Canadians learn what hate looks like online and how to deal with it, Fogel said, noting this would be about “all hate, not just antisemitism, about anything that marginalizes or delegitimizes anyone.”

Social media can be a power for good, he said, “but there is a dark side to it.”

Conference participants will also ask politicians to expand and streamline the Security Infrastructure Program, which is designed to enhance the safety of places of worship and other gathering places.

The “threat levels” have changed, Fogel said, adding there is a need to provide extra security today.

Through the conference, “we want to empower people to be part of the solution” to fighting hatred in Canada, Fogel stated. “It’s not just a Jewish problem. All Canadians have to take part in addressing it.”

At a Tuesday evening gala, the Honourable Irwin Cotler will receive a lifetime achievement award in recognition of his work on behalf of human rights for the world’s most vulnerable and oppressed citizens. Leaders of Canada’s main political parties are also slated to speak at the event.

In addition to what was planned before war broke out, the conference program will be adapted to focus on the fighting between Israel and Hamas, including any negative effects for Jews in Canada. Security will also be beefed up, said Nicole Amiel, who directs media relations for CIJA.










Belle Jarniewski of Winnipeg greets new Special Envoy Deborah Lyons 

2. Participants in Antisemitism: Face It, Fight It share hopes for the event

WINNIPEG, Man. -- For Laia Shpeller, attending the Antisemitism: Face It, Fight It Conference in Ottawa is an opportunity to “engage in meaningful discussions about being Jewish in Canada and how our community can work together.”

The Winnipegger, who is studying biomedical engineering at the University of British Columbia, sees the Oct. 16-17 event as a way to “learn from diverse voices within the Canadian Jewish community, and learn about how their experiences, both with antisemitism and in general, have influenced their work.”

As a young adult, she also believes it’s important to have young voices at the conference since they can “bring a unique perspective due to our willingness to challenge norms” and because of their exposure to diverse perspectives during their studies.

At the same time, the conference will allow her to learn more about advocacy and policy strategies so she can improve her efforts to engage politicians.

Noting the event has been in the planning for a long time, she said the rise in antisemitic rhetoric and actions due to the Israel-Hamas war “makes having these conversations right now even more critical.”

Steven Kroft is national vice-chair for Centre for Israel and Jewish Affairs (CIJA). Also from Winnipeg, he agreed the war between Israel and Hamas gives the conference “new meaning and a greater sense of urgency.”

Even without that, although Jews make up less than one per cent of Canada’s population they are targets of about 55 per cent of all religious hate crimes, he said.

That’s why, for him, “bringing Jews and others from across Canada together to develop a collective path forward in our fight against antisemitism is so critically important . . . If we don’t stand up and fight for ourselves, who will?”

For Rob Berkowits, executive director of Winnipeg’s Rady Jewish Community Centre, the Conference is a way to “educate myself on how to best support my staff and volunteers” during a time of rising antisemitism.

Antisemitism, he added, “creates a feeling of isolation and vulnerability so it is important to learn strategies to manage and support these emotions.”

When it is over, he hopes to have “a better understanding why antisemitism persists and to develop an improved skill set to combat its rise in my local community.”

The conference is sponsored by the Centre for Israel and Jewish Affairs (CIJA), with support from Jewish Federations across Canada, including the Jewish Federation of Winnipeg.

Due to the war between Israel and Hamas, some of the speakers from Israel are unable to attend and the event will have extra security. 

The event kicks off Monday morning with an announcement from the Government of Canada announcing the appointment of a new Special Envoy on Preserving Holocaust Remembrance and Combating Antisemitism.















New Special Envoy Deborah Lyons with outgoing Special Envoy Irwin Cotler

3. New Special Envoy on Preserving Holocaust Remembrance and Combating Antisemitism named

OTTAWA, Ont. -- Deborah Lyons has been named the new Special Envoy on Preserving Holocaust Remembrance and Combating Antisemitism.

The announcement was made by Karina Gould, Leader of the Government in the House of Commons, at the start of October 16-17 Antisemitism: Face It, Fight It Conference in Ottawa.

The announcement “holds particular significance today as Canadians come to terms with the brutal attack by Hamas against Israel a week ago,” said Gould, adding the Government of Canada “stands shoulder to shoulder” with the Jewish community at this time.

She went on to note how many members of the Jewish community in Canada are “hurt and anxious” while, at the same time, acknowledging the humanitarian crisis in Gaza.

Outgoing Special Envoy Irwin Cotler praised Lyons’ appointment, saying he “could not be happier” to see her in that role.

“She is the right person in the right place at the right time” due to her experience and expertise, he said, especially at this moment “of historical inflection” in “the shadow” of last weekends attack by Hamas against Israel.

Lyons, the former Canadian Ambassador to Israel from 2016-20, acknowledged she is taking on the role “at a most critical time.”

As Special Envoy, she promised to promote Holocaust education, “including at Canadian universities;” to highlight the "many contributions of the Canadian Jewish community;” to address online antisemitism; to “collect data so no one can tell me this [antisemitism] isn’t real; and to “make sure every member of the Jewish community in Canada feels safe.”

She delivered a special charge to Canada’s faith and spiritual leaders to “bring us all together . . . Now more than ever we need you and your leadership to gather us together as all God’s children.”

She also asked the media to “challenge the seeds of misinformation” and “shine a light in the darkness and hold it high. Political leaders at all levels, she added, should "guide us and unite us and inspire us to build a diverse and inclusive Canada.”

She said she looks forward to working with Amira Elghawaby, Canada’s special representative on combating Islamophobia.

When asked what she, as a non-Jew, could bring to the special envoy role, Lyons said she would bring “the Canadian way” of “fighting for one another and supporting each other,” especially in “these difficult times.”

Lyons also served as Special Representative of the Secretary-General of the United Nations for Afghanistan, Head of the United Nations Assistance Mission in Afghanistan from 2020-22 and as Canadian Ambassador to the Islamic Republic of Afghanistan from 2013–16.

She succeeds Cotler, who was appointed to the role in 2020 as part of the Government of Canada’s commitment to preserve the memory of the Holocaust and combat antisemitism.

During his time, the federal government expanded its commitment to the International Holocaust Remembrance Alliance and committed $85 million in 2022 for programs to fight antisemitism, along with funding for new Holocaust museums in Toronto and Montreal.

The conference, the first national event of its kind in Canada. is sponsored by the Centre for Israel and Jewish Affairs (CIJA), with support from Jewish Federations across Canada, including the Jewish Federation of Winnipeg.















Michael Levitt with former Alberta Premier Jason Kenny and online panellists 

4. To fight antisemitism, Jews need non-Jewish allies

OTTAWA, Ont. -- “Jews cannot fight antisemitism alone.” 

That was the sentiment expressed by Michael Levitt, president and CEO of the Friends of Simon Wiesenthal Centre, at the October 16-17 Antisemitism: Face It, Fight It conference in Ottawa. 

Progress has been made, he went on to say, noting it is “not just up to Jewish Canadians to fight it . . . what starts with Jews never ends with Jews.”

Levitt was joined in a session at the conference titled United Against Antisemitism: Confronting the Challenge Together by Lord John Mann, Independent Adviser on Antisemitism to Government of the United Kingdom; Farah Pandith, a senior advisor at the Anti-Defamation League in the U.S.; and Katharina von Schnurbein, European Commission Coordinator on Combating Antisemitism and Fostering Jewish Life.

For Schnurbein, non-Jews play a significant role in ensuring Jews can go about their lives feeling “free from insecurity . . . we have a responsibility to Jewish people.”

Mann added that non-Jews today need to stand up against the “new Nazis” today just as some did in the previous century standing up against Nazism in Germany.

“We need to fight the Nazis of Hamas,” he said, adding a “huge majority” of people in Great Britain “stand with Israel.”

“We will not tolerate this evil,” he said. “We will keep fighting, keep organizing.” 

For Pandith, a Muslim, having people of other faith communities speak up for Jews is key.

“A different voice carries a different weight,” she said. “The messenger matters. It can’t just be Jews standing up against antisemitism or Muslims standing against Islamophobia.”

She encouraged members of the Canadian Jewish community to reach out to other faith groups, “otherwise we will never get to where we need to be.”

On the subject of social media, Schnurbein noted the Europe Union has created a new digital service act to force social media companies to police online hate on their platforms.

If they don’t respond quickly to complaints about online hate speech, the companies can be fined, she said, noting there has been an “explosion” of online antisemitism following the October 7 Hamas attack on Israel.

“We are reminding them [the companies] of their obligation under the Act to enforce the rules,” she said.

Pandith said the U.S. government has been “very sloppy” in its enforcement of online hate regulations, adding people were “naïve” about the role social media would play when it first started.

“We didn’t understand the impact it would have,” she said. “We didn’t ask hard enough questions. Now we are dealing with a toxic environment.”

Pandith admitted she was not optimistic about the future online “if we don’t get more serious” about dealing with hate on social media. “If we don’t, we will see things get even worse,” she said.

Also speaking at the session was Jason Kenney, former premier of Alberta who also served as Minister for Multiculturalism for eight years in Prime Minister Harper’s government.

Kenney was critical of what he called “pseudo intellectualism” on some Canadian university campuses that justifies antisemitism, both online and in demonstrations “glorifying” attacks on Israel by terrorist organizations like Hamas and other hate directed at Jews.

Arif Virani, Minister of Justice and Attorney General of Canada, indicated the federal government intends to bring legislation forward to combat online hate speech. “We need safe online environments just as we need safe streets,” he said.

The conference, the first national event of its kind in Canada. is sponsored by the Centre for Israel and Jewish Affairs (CIJA), with support from Jewish Federations across Canada, including the Jewish Federation of Winnipeg.











Joel Finkelstein talks to participants at the conference . 

5. Warning system for antisemitism needed: Expert


OTTAWA, Ont. -- Just like there are early warning systems for hurricanes and tornadoes, Canada needs a system to warn about oncoming hate on social media.

That’s the view of Joel Finkelstein, chief science officer and co-founder of the Network Contagion Research Institute at Rutgers University in New Brunswick, New Jersey.

Hate on social media “is a predictor about real-world actions,” said Finkelstein in an interview at the Oct. 16-17 Antisemitism: Face It, Fight It conference in Ottawa.

“What we see on social media turns up in real life,” he said, comparing his work to those who forecast storms. “Social media is a signal of what’s to come.”

This is true whenever there is a conflict in Israel, he said, noting that online activity translates into real-world hate. “The conflicts are short, but there is a long tail, a spillover effect,” he said.

By way of illustration, Finkelstein pointed to a report about a conflict between Israel and Palestinians in Gaza in 2021.

An analysis by the Institute of more than 100 million social media posts at that time showed a relationship between online antisemitic remarks on social media platforms and actions a week or two later against Jews in cities like Toronto and Montreal.

This included antisemitic activities such as chants of violent slogans against Jews during protests, vandalism of synagogues, hate graffiti in Jewish neighbourhoods, and other hate crimes.

With the current war between Israel and Hamas, “there is looming anticipation of a similar surge in antisemitism in Canada,” he said. “We have already started to see several similar trends emerging.”

Content on social media is created and shared by ideological hate groups, he said, but then propelled by bot farms and troll accounts operated by authoritarian regimes like China, North Korea and some in the Middle East — regimes that “want to disrupt and destabilize western democracies.”

Through his Institute, Finkelstein tracks hate towards other visible minorities in the U.S., such as Muslims and Hindus, reporting the findings to law enforcement agencies, the FBI, politicians and others.

This includes reporting to social media companies to let them know what’s happening on their platforms. “We alert them so they can respond in good faith,” he said.

Finkelstein believes Jews in Canada could lead the way in helping to set up such an early warning system in this country.

“It should not just be for Jews, but we should make it possible,” he said, adding “community security must evolve in the age of information disorder to meet these threats with faster, real-time data collection.”

Becca Wertman-Traub directs research for the Centre for Israel and Jewish Affairs (CIJA). She agreed with Finkelstein that such an early warning system would be helpful in Canada.

“In 2021, we didn’t make the connection between social media and actions,” she said. “Now we are aware of the relationship between the two. It shows we can anticipate something after a spike in online hate towards Jews.”

Currently, most of what CIJA can do is reactive since information about hate from Statistics Canada is a year old, based on reports from police across the country, she explained.

That is like doing clean-up and recovery work after a storm instead of proactively getting people, governments and police ready for one so they can be prepared and weather it better, she said.

That’s why research by people like Finkelstein is so important. “By tracking social media, we can get current data by the day, hour and minute,” she said. “We can act much quicker.”

Such a system doesn’t currently exist in Canada, but CIJA is exploring it as an option, she noted.

The conference, the first national event of its kind in Canada. is sponsored by the Centre for Israel and Jewish Affairs (CIJA), with support from Jewish Federations across Canada, including the Jewish Federation of Winnipeg.













CIJA's National Chair, Gail Adelson-Marcovitz, welcomes Trudeau to the podium to speak at the conference.

6. Federal party leaders condemn Hamas attack, pledge support for Canadian Jewish community

OTTAWA, Ont. -- “The hearts of all Canadians are broken.”

With those words, Prime Minister Justin Trudeau began his remarks October 17 at the Antisemitism: Face It, Fight It conference in Ottawa.

The Prime Minister was one of four political leaders invited to speak at the event, including Pierre Poilievre, leader of the Conservative Party, Jagmeet Singh, leader of New Democratic Party, and Bloc Party leader Yves-François Blanchet.

The Prime Minister went on to condemn the October 7 attack by Hamas and to call for the immediate release of all their hostages, adding his government “deeply cares” for those who are missing and is in close touch with families of hostages.

The Canadian government is also working as quickly and safely as possible to evacuate Canadians in the region impacted by the fighting, he said, noting that 12 flights have taken out over 1,300 people.

“We will not stop being there for affected Canadians,” he stated.

Israel, he added, has a right to defend itself, and Canada “will always be a friend to Israel, defend its rights, including its right to exist.”

He decried the “unimaginable acts” of indiscriminate killing of Israelis by Hamas, adding that Hamas “doesn’t represent Palestinians or their legitimate aspirations for a better future.”

Hamas, he said, only stands for “more suffering for Israel and Palestinians.”

Noting he has heard stories of Canadian Jews who are worried about wearing yarmulkes or stars of David necklaces, Trudeau said the RCMP is working to “keep the Jewish community safe and secure.”

“You are not alone,” he stated. “The work of fighting hate is the work of all of us, all Canadians, especially non-Jewish Canadians . . . we all need to stand up and step up.”

He concluded his remarks by saying “this too shall pass . . . we will get through this together, my friends.”

Trudeau was followed by Pierre Poilievre, who said Jews in Canada are not alone at this time. “You have friends who are with you through thick and thin and onward to triumph,” he stated.

He went on to condemn Hamas, who he said had the goal of maximizing the “bloodshed of Israelis, Palestinians and Muslims as well.”

Iran, he said, was behind the attack because it wanted to disrupt negotiations between Israel and Arab countries in the region. “They were worried the talks could lead to peace and stability in the Middle East,” he stated.

That, he said, would be “Iran’s worst nightmare” since it would end the “unending supply of suffering and resentment” that fuels conflict in the region.

While saying he grieved equally for innocent Israeli and Palestinians killed and wounded by the fighting, Poilievre said there is “no equivalence between terrorists that seek to maximize the deaths of innocent civilians and the state of Israel that seeks to protect them.”

He went on to say Canada must ensure there is the minimum loss of life and suffering of the Palestinian people, and that safe zones should be created in Gaza along with a humanitarian corridor for food, medicine and water.

He went on to call for a comprehensive review of Canadian aid to Palestinians to “make sure it reaches people in need, not terrorists.”

In his remarks, Jagmeet Singh, leader of New Democratic Party, also condemned the attacks, adding he has heard the pain of Jewish Canadians who “are deeply afraid . . . I want to acknowledge that.”

He also grieved for Palestinians killed and injured by the fighting, he said, and called for the upholding of international law to protect civilians in Gaza.

Celebrations of the attack in Canada are “never justified,” Singh stated, adding “we must all do what we can to tackle the rise in hate.” This includes, he said, doing more to secure places of worship and tackling online hate.

“In these dark times, we must treat each other well,” he said, going on to call for an immediate ceasefire — acknowledging, ad he noted, that “not everyone will agree with me.”

In the future, he stated, he hoped Canadians could “build a world where all our children can live in peace.”

The evening ended with an expression of gratitude for Irwin Cotler, the outgoing Special Envoy for Holocaust Remembrance and Combating Antisemitism.

A crowd of pro-Palestine protestors was outside the convention centre main exit at the end of the evening, requiring conference participants to leave by another door.

The two-day conference, the first national event of its kind in Canada, was sponsored by the Centre for Israel and Jewish Affairs (CIJA), with support from Jewish Federations across Canada, including the Jewish Federation of Winnipeg.


Monday, October 9, 2023

Catholic women meet in Winnipeg to pray for equality in the Church

 

While people from around the world were gathering in Rome on October 4 for the first day of the historic Roman Catholic Synod on Synodality, a small group of Winnipeg Catholics met at St. Mary’s Cemetery at noon that day for a service of prayerful solidarity in support of the call for women’s equality in the church. Read the story here.

Sunday, October 8, 2023

Holding his breath: Rick Schmidt's lung transplant journey








I began to follow Rick for the Free Press in June, 2022 when he learned he qualified for a lung transplant. I followed him through the ups and downs of that experience, talking to him, his wife Sara Jane, members of the Transplant Manitoba team and a surgeon in Edmonton who was part of the team that transplanted the donor lung. And I was there when Rick came home to Winnipeg from the hospital through to his decision to enter palliative care in late September, 2023. The articles below, in the Winnipeg Free Press, chronicle that journey. Rick died Oct. 2. 

1. Holding his breath, June 14, 2022. Rick starts his transplant journey, beginning with a description of the disease that propelled him in that direction.

2. Have the organ donation conversation, July 18, 2022. One goal for Rick in telling his story was to encourage people to sign up to be organ donors. He was never so happy as to learn someone had indeed signed up.

3. Health care contacts prove to be a breath of fresh air, Sept. 27, 2022. Rick (and Sara) had nothing be good things to say about the people who cared for him during his transplant journey. 

4. Hope and worry: finally in queue for lung transplant, Feb. 4, 2023. Rick didn't wait as long as some to be accepted for a transplant, but it still seemed to take forever. 

5. Take a deep breath while waiting for transplant operation, April 1, 2023. Getting accepted into the lung transplant program is one thing; waiting for a suitable lung to come available was another.

6. Sigh of relief: Rick gets the call to go to Edmonton and gets a new lung, April 17, 2023. The call came early on April 10 and they were off to Alberta for a successful transplant surgery.

7. Respiratory roller coaster: The long and uneven road to recovery post-transplant, July 30, 2023. If everything had gone as expected, Rick would have returned to Winnipeg 2-3 weeks after the transplant surgery. Things did not go as expected.

8. Putting his life in God's hands: Rick opts for palliative care, Oct. 2, 2023. After six months of ups and many downs, and with no guarantee the lung transplant would ever be successful, Rick made the decision to end the process. He died on Oct. 2 believing "the same God who loved me in life will love me after I'm gone."

Tuesday, October 3, 2023

Putting his life in God’s hands: Lung transplant patient Rick Schmidt moves into palliative care, passes away

 

Starting in 2022, I followed my friend Rick Schmidt in a series of articles about his lung transplant—from his application for the transplant program through acceptance, then through the transplant itself and coming home from the hospital in summer. I also spoke to transplant team members, nurses and surgeons about the transplant surgery, recovery and the importance of organ donation.

 

Unfortunately, the transplant never took. Rick decided to opt for palliative care a week ago. I interviewed him one last time in the hospital last week. Here's my final story in that series. 


Rick died early in the morning on Oct. 3. Requiescat in pace.


+++++++++++++

When he started his medical journey, Rick Schmidt knew that one in 10 lung-transplant patients don’t survive the first year.

Rick Schmidt sits surrounded by medications at his kitchen table back in July, after his lung transplant. Last week he made the decision to move into palliative care.

“It turns out I am that one person,” he says, speaking from his hospital bed at Health Sciences Centre.

In consultation with his wife, Sara Jane, and medical staff, Schmidt, 68, made the decision last weekend to cease aggressive medical interventions, including anti-rejection drugs, and start the palliative-care process.

“I’m just not going to get better,” he said, noting his new lung just never connected to his airway. “I could keep on trying, maybe get a few more months, but things are so hard right now. I don’t want to keep living this way.”

Schmidt was diagnosed with idiopathic pulmonary fibrosis in 2018, a terminal condition in which the lungs harden and make breathing difficult. In June 2022, he was accepted into the Manitoba lung-transplant program.

In April, this year, he got the call that a lung was available. He flew to Edmonton for the operation.

The first week after transplant went well, he said. But then things started to crash.

“Everything tanked,” he said as infections and other complications set in. “I would get better, then tank again.”

Instead of coming back to Winnipeg after a few weeks, as expected, Schmidt ended up spending three months in hospital in Edmonton, before returning to Winnipeg in July.

He managed to live at home for a short time before being readmitted to the hospital. After stabilizing, he was sent back home — only to have to return again when breathing became difficult.

He’s been at Health Sciences Centre since the start of September.

The couple made the decision to him to go into palliative care after learning from the medical team that the chance of recovery “was more and more remote,” he says.

“The cascade of complications added up to an insurmountable barrier for him,” Sara Jane says, adding his weight has fallen to about 103 pounds. “There was little prospect of a good life.”

Schmidt, who was an insurance broker before becoming a mediator and university instructor at Menno Simons College, says, “The cost-benefit ratio just wasn’t there. The chances of my long-term survival are minimal. I want to keep living, but it’s just not in the cards. It’s the reasonable choice.”

In place of the anti-rejection drugs and other medications, the goal now is comfort. This includes regular injections of hydromorphone for the anxiety and panic that comes with breathlessness.

One thing the couple appreciated all along the way was how open and honest the medical staff were about the surgery and the chances for recovery.

“There was never a snow job,” Schmidt says. “They never gave me false hope. They were always upfront with us.”

Looking back, he doesn’t regret having the transplant. “I knew I had to give it a try. Besides, my condition was terminal. What did I have to lose?”

And yet, after all the challenges, he isn’t sure he would do it again. “Maybe not, knowing what I know now,” he says. “But I made the best decision based on the information I had at the time.”Sara Jane agrees. “He had already declined a lot before the surgery,” she says. “His life was already limited.”

One thing the couple wondered was how the transplant team felt about his failure to recover.

“They told us they learn something from every transplant operation, even the ones that don’t turn out like they hope,” Schmidt says. “This failure could help them to help someone else succeed.”

While Schmidt is adjusting to his new reality, so is his wife.

“Up until now my role has been to support him toward living,” says Sara Jane, who lived in Edmonton the whole time he was in hospital there and who is now staying with him at Health Sciences Centre in these final days.

“It’s quite a head shift to start thinking from how I could help him have a good recovery to how I can help him to have a good death.”

One thing they both appreciate is the support of their church community and other friends and family. “We get strength from that,” Schmidt says. “People are pouring love on us.”

Adds Sara Jane: “We feel very well looked-after.”

They also have nothing but praise for everyone they met in the medical system.

“The people in the Manitoba Lung Transplant Program, the transplant team in Edmonton, the doctors, the nurses, the aides, the cleaners and everyone else, they’ve all been great and such a support,” Schmidt says. “They have been empathetic, attentive, supportive. It’s clear that, for them, it’s not just a job.”

As for what the future holds, that’s unclear. He could hold on for a week yet, maybe more.

All they know is they are at peace about the decision to begin palliative care. For Schmidt, that includes his faith.

“I’ve put my life and death in God’s hands,” said Schmidt. “The same God who loves me in life will love me after I’m gone.”

God’s love, he added, “is not predicated on me having a certain set of beliefs. God is love, full stop.”

To become an organ donor, visit www.signupforlife.ca.